Wednesday, August 22, 2012

the day I've dreaded....

While my guy was in hospital recuperating from his very successful surgery (he is now walking only with a cane and has no more need for a wheelchair), they took his blood for the Hep C Quantitative test that was his 6-month after ending his meds.

We saw his doctor on Monday and did not get the news we hoped for.

His PCR is positive and his viral load is right back where it was before he started treatment last year. We were shocked, to say the least, since his tests have all been "undetectable" since week 4.

For both of us, it was like hitting a brick wall, and I can imagine how much worse it was for my honey. We cried; tried to take it in; and are trying to move on.

His doctor said the positive to take away from this is that my honey is intereferon-responsive. But that doesn't seem positive since he can't be treated again with this therapy. We now have to wait possibly 5 - 10 years for a new therapy to come along.  His doctor did promise to cure him, but that didn't help on that day at all.

Will try to keep posting here, but not sure when that will be. If we receive any news or information, I'll surely put it up here.

Peace, and I pray that everyone on this therapy finds that cure that we're all dreaming of.

Wednesday, August 8, 2012

Surgery a HUGE Success!

My man had his VERY long-awaited surgery on Monday, and I knew when I saw the doctor and his PA after the surgery that things went well. They both greeted me with the biggest smiles on their faces....I'd never seen either of them smile quite like that.  I was also surprised to have them both say to ME,,, you make sure YOU get some rest and take care of yourself.  They were very emphatic and repeated it to make sure I got it. Let's hear it for the caregiver!!

The surgery went longer than anyone would like, but not as long as they said it could possible go.....my honey went into the OR at about 11am and was in recovery at about 4:45pm. Saw him in recovery a couple of hours later and he looked great, but was in enormous pain (doc said that would happen). But, it's a different kind of pain; this was surgical site pain, not the pain he was having from two vertebrae rubbing together.

Yesterday morning was a shocker....when I went to see him in hospital, he was able to move his left foot and left leg like he did before the accident last September!!!  His doctors used to do strength tests...you know, like, push up against my hand, or try to stop me from pressing down...that kind of thing. My guy asked me to do that with his feet and legs and I was completely gobsmacked at how strong he was!!!  The PT came in a bit later to get him out of the bed and he stood up in 2 seconds! That alone used to take him 20 minutes first thing in the morning. He is so over the moon about the way things have turned out that he hugged his surgeon when he visited last night!

The only bad thing is that my Mum fell last Thursday coming out of the shower and broke three ribs. She was in hospital for two nights and we brought her home on Saturday. She seemed to feel better once home, and Sunday seemed pretty nice, too. Oddly enough, the morning I take my fiancĂ© for his surgery, my Mum takes a downward turn. She has crying jags all during the day. I've been going back and forth from the hospital and home to take care of both my patients, and that is causing conflict. She gets mad when I leave here and he gets mad when I leave the hospital. I drive away from both places in tears from the stress and make sure I walk in to each place with a smile on my face.  Luckily, my man will be coming home either Friday or Saturday AND (big drum roll) will not have to be going to a rehab facility afterwards ---- he's THAT advanced after the surgery. With both of them under the same roof, things will be easier for me; only running from room to room instead of city to city.

I pray daily to God that he gives my family a break, especially me. I'm very close to a breaking point and have no idea what would happen to this family if I was to end up in a hospital bed.

But let's focus on the positives right now. Two people who I adore are on their way back to health. And a HUUUUUGE thank you to my brother, who has realized what his presence in this family means and is making changes in his life to be with us on a more regular basis. He's been taking time off work to help care for Mum a few hours in the morning and evening. That makes my life a bit easier, and I couldn't be more appreciative. Thanks, Bro!

Also, my fella will be having his HEP C QUANTITATIVE blood test today in hospital. Friday will be his 6-month mark of stopping all Hep C meds and it will give us the "UNDETECTABLE" results we've been waiting for. The "journey towards a cure" is almost complete!